The Truth Behind the Facade

Hello, my darling friends.

I shared this video (with the egregious freezy face) on Facebook tonight and from the emails I got it seemed to help some people through their own hard times. So, I thought I’d post it here too.

Miss you all so much! Tons of love…

For those of you who suffer…mentally…physically or both, this is for you.

This is me at my most vulnerable and sharing something I NEVER thought I’d share, but it’s important for me to let everyone else who is in pain, in whatever way, know that you are not alone. I am here for you. Call me. Text me. Email me. Cry, scream, vent or sit in silence on the phone with me. We can watch a movie together over the phone. If you need someone who understands your fear, your anger, your pain, your desperation, your exhaustion…I’m here.

God bless and much love to you all, including the amazing people who help take care of us during our darkest hours. Your job is so very hard and so very appreciated. Love you all!

 

PS: What a HIDEOUS FREEZY-FACE! Really, they couldn’t pick something that looked even slightly less stupid???? 😉

Musings of an Old Hag (but an alive one) on her (almost) Birthday

First and foremost, massive hugs and love to all of you for your many emails, flowers and other goodies you sent to the hospital to cheer me up and the tons of prayers that most certainly kept me alive these last 4 1/2 months.

Also, thanks to the good Lord above for blessing me with a second set of doctors and surgeons who, quite literally, saved my life. I will forever be thankful to God and to them for their gifts of skill and determination to keep me alive.

While the last 47 years have been full of joy and laughter, love and lust, peace and grace, they’ve also been quite full of pain–both of body and mind. I sometimes startle when I think of it. And I think that’s the greatest blessing of all…that the bad hasn’t overcome the good and made my life one of sadness and fear. That I still am a bit shocked when I think of all the trials I’ve been through shows me that it’s not those trials that define who I am, but it’s those trials from which I’ve learned to be who I am.

Since January and the medical issues I went through and am still going through, I’ve endured more physical pain than I ever thought possible. And the emotional toll has been devastating. The fear. No. The terror of everyday life over the last 140 days has been stunning in its endurance. But, even with all that, and what continues to happen as a result of that, I know I’m blessed. And here’s why:

  1. My husband not only tells me he loves me multiple times each day, but he shows me. What’s he’s had to endure watching me go through this mess would have broken a weaker man. Instead, he tells me it’s his privilege and honor to take care of me. I didn’t know love that like existed. A person’s true character shines brightest not in the light, but in the dark. He lit up my entire world and continues to do so.
  2. My sister flew out and took care of me for almost 3 weeks. She made damn sure the doctors, nurses and everyone else that had to do with my care did everything that was required to keep me alive. Her dedication to my health, both physical and mental, was beautiful and more than I ever could have asked for. She was, and continues to be, such an amazing support and shoulder. I don’t know what I’d have done without her.
  3. My mom, God bless her, who is 78 and seen more pain in her life than 10 other people combined, managed to survive all of what has and is happening and not snap or give in to despair. She even makes me a batch of homemade spaghetti sauce every week to cheer me up and make meals easy for me as I’m getting back on my feet.
  4. My 2nd set of doctors and nurses did their damnedest to keep my ass alive. My nurses showed me so much love it overwhelmed my heart. I had one doctor in particular who made me feel safe every time he walked through the door. When you are living in non-stop terror and pain, that reprieve is more valuable than anything on earth.
  5. My home nursing staff breathed love all over me with every visit. I’ll never be able to thank my sweet nurse who managed my care enough. I think of her so often and how her tenderness, love, support and understanding helped me through one of the truly darkest times of my life. I’d never before been so sad and so frozen in fear, but she held my hand and told me I was going to make it through. On her last visit, we both got emotional for we’d forged a bond through pain and understanding that doesn’t go away overnight.
  6. My friends rallied like never before to pray for me, support me and send me love on a continual basis. My sister kept everyone informed over Facebook as to what was going on and the outpouring of tenderness still warms my heart. I still cannot believe the cards, flowers, blankets, teddies and other wonderful tokens of love that my friends sent me to cheer me up. And I still feel bad that somehow all the wonderful notes that came with the heart-felt gifts have vanished. I would love to have been able to reach out to every kind person that sent me a card or gift and thank them profusely–alas, I was very drugged and while I was overwhelmed with thankfulness when my husband read me the cards when delivered, for the life of me I can’t recall about 80% of who sent what–but a HUGE thanks to those of you who sent me reminders that I wasn’t going through this alone. And a HUGE thanks to all of you who reached out virtually to let me know you were praying for me. Those prayers made all the difference.
  7. My ability to forgive hasn’t weakened. For that I’m eternally thankful. Sometimes, the rage and the heartache and the sense of betrayal can be so overwhelming it feels like I’m sinking into a hole from which there is no escape. But before I get to the bottom of it, I remember to forgive. And that pulls me up out of it. Though sometimes that dark hole tugs back, I won’t let it gain purchase for that is place I never want to live.
  8. I’m still alive. Dammit! I’m forever thankful for that. I still get the privilege of loving my husband, my family and my friends. I still get to do my best to bring joy (often through sarcasm!!) to those around me. I still get the pleasure of petting my kitties and taking care of the chickens, hamster and hedgehog. I still get to go to Starbucks and chat with all the wonderful friends I have there (I drink way too many frapps!). I still get to giggle with my hubby about silly things and make my teddy bears have conversations of a most inappropriate sort. I still get to love all the things I loved before…that is truly a blessing. And, most importantly, I didn’t die and leave my family bereaved. The thought of hurting them even more than the last 4 1/2 months already have just tears out my heart. So, I’m forever thankful that they didn’t have to plan a funeral, decide what to do with my stuff, have holidays without me and mourn my loss. The feeling of pain for those I love is always more important to me than my own pain, and I’m blessed to have kept them from that particular kind of anguish.

For those people who’ve been around me, most of you likely think that all is good as I’m still cheerful, quick to giggle and have done everything in my power to stay strong and be thankful for the good things that remain. All of that is true. It’s not a façade. At the same time though, way down deep where fear is a living and breathing thing, I’m truly terrified of the upcoming tests I still have to face and what the results of those may be. I’m very lucky to have a brain that compartmentalizes very well…it lets me get on with life while wrapping up all the pain and fear into a little box that I only let see the light on rare occasions. If you are so inclined, I’d be ever so grateful for continued prayers and healthy vibes. I still have some icky things coming up that scare the ever-loving fuck out of me, so your positive thoughts are so very appreciated. 🙂

I know this hasn’t been my typical post, and I know it’s been a long time since most of you have heard from me at all, but I’ve tried to spend these last months focusing on getting better, reducing my constant fear, learning to live with unexpected consequences, and being thankful that I’m even here to write this.

After 47 years of life I know that the most important things have nothing to do with money, possessions, looks, position, power or any of that other superficial bullshit. What I do know is that allowing people to love you and loving them back with your whole heart is the greatest gift in the world. For that knowledge, I’m forever thankful and blessed.

May you all have a wonderful life and know that I’m always praying for you to be happy, healthy and safe.

Much love,

Jodi

Pre-surgical update (From HELL!) ;)

First and foremost, thanks so much to all of you for your wonderful prayers praying-kittenand well wishes. It means the world to me.

Surgery is in 19 hours and to be quite frank, I’m a wee bit scared. So any additional prayers or healthy vibes you guys can send up would be so appreciated!

After getting some more tests (thank God all the blood work came back great! Yay!) my doc said that she didn’t feel comfortable just having a surgical assistant in with her since (this is not a direct quote but is pretty much what she said), “My insides are so fucking fucked.”  😉 So, she’s having a second surgeon join her in the operating room.freaky-kitty

Yeah, she was far more delicate than that, awesome doc that she is, but that was the jist.

Seems as though all my prior surgeries have made everything such an adhesion-covered mess that they could not even SEE my ovaries during the internal ultrasound (read that as being viciously fucked by a cattle prod…ouchy!!!), they found 8 tumors and tons of uterine muscle lesions. Plus, with my last cattle prod adventure, they told me my bowel had grown into my left ovary and now share a blood supply.

I guess it’s good that my innards all get along so well…they place nice together! 😉grumpy-cat-no

Anyway, it looks like this is going to likely be a complicated mess and while my doc is still hopeful and is going to peek at everything first by putting a little camera in my bellybutton (which is seriously like 9 feet deep!) and looking around, she thinks it’ll probably end up being an open surgery. OUCH!

And she’s going to go in through my old zipper incisions, which is good in that I’ve already been opened up there 3 times already, but bad in that vertical incisions take so much longer to heal and they hurt like a mo fo.

I’m doing my very best to prepare everything for the smoothest recovery possible and trying VERY hard to keep all my fears to myself as not to scare my family as I’m sure they are nervous enough, but I had to get it out somewhere. Being opened up like this a 4th time is truly terrifying, even though I’m an old pro at it.

Surgery is a 7:30 on Tuesday and luckily I’ll be at a great hospital, Scottsdale Shea, that has a great reputation, so, I’d be so very thankful, from the bottom of my heart, for any extra love you can send my way around that time.

Much love to all of you!!! XOXOXXO

Oh, and I’ve decided to bring two teddies with me! Gotta have critters to cuddle! 😉

Can I ask for a few prayers?

 

As we all know, I’m old.

Methuselah and I are 2nd cousins. Yep. That old.

And with that age comes body parts that wanna fall off (or out in this case). 😉

It looks like I’ll be getting a full hysterectomy in a few weeks.

ICK!

I’m not too worried as things happen as they will and I know God will take care of me, but I’d really love it if those of you who are inclined would send me some prayers or healthy vibes for a successful surgery and a not-too-painful recovery.

The only thing that’s a bit scary is that I’ve had 3 previous abdominal surgeries in my life. Been zippered open from boob to muff! OUCH!!!!

And with all that cutting and slicing and dicing I’ve accumulated a great deal of scar tissue and adhesions.wondertwins

Most fun of all, my bowel and left ovary have joined forces, like the Wonder Twins, and now share a blood supply. So what is normally a pretty routine surgery is, well, a bit more complex.

Thank God I have a wonderful family and support system. My sister is going to fly in and stay with me a couple of weeks to help take care of me when I get out of the hospital. I’m so thankful to her for that. I don’t want to put the onus of taking care of my every need on the hubby. Even though he’d be happy to do it, taking care of someone can be mentally and physically exhausting. So it’ll be wonderful to have my adorable sissy out here to lend a hand.

The fun part about surgery is that after all the other things they’ve removed from my bod, there’ll be plenty of room for the few remaining organs to move around and get to know one another better! They could install a dance floor with all the space that’ll be available. Party Time Mo Fo!

As of surgery, here are all the body parts that I’ll have been relieved of in life:

  1. Appendix
  2. Gall bladder
  3. 1/2 a stomach
  4. 6 feet of bowel
  5. Ovaries
  6. Uterus
  7. Fallopian tubes

Yep, I’m essentially an empty vessel!!! 😉 But hey, that’s cool. If I ever get into a bar brawl and someone tries to shank me, the chances of them hitting a critical organ are significantly reduced. So, a girl can’t complain! 😉

Anyway, thanks a ton for any prayers or happy vibes you can send me. I appreciate them from the bottom of my heart. (At least they haven’t removed that fucker yet!)

Much love!!!

PS: I WILL be taking my Pink Teddy with me. Pink Teddy

I don’t care that she’s covered in more grime than cat poop that’s been rolled in chicken poop. She’s my teddy and I need her. 🙂