The Truth Behind the Facade

Hello, my darling friends.

I shared this video (with the egregious freezy face) on Facebook tonight and from the emails I got it seemed to help some people through their own hard times. So, I thought I’d post it here too.

Miss you all so much! Tons of love…

For those of you who suffer…mentally…physically or both, this is for you.

This is me at my most vulnerable and sharing something I NEVER thought I’d share, but it’s important for me to let everyone else who is in pain, in whatever way, know that you are not alone. I am here for you. Call me. Text me. Email me. Cry, scream, vent or sit in silence on the phone with me. We can watch a movie together over the phone. If you need someone who understands your fear, your anger, your pain, your desperation, your exhaustion…I’m here.

God bless and much love to you all, including the amazing people who help take care of us during our darkest hours. Your job is so very hard and so very appreciated. Love you all!

 

PS: What a HIDEOUS FREEZY-FACE! Really, they couldn’t pick something that looked even slightly less stupid???? πŸ˜‰

Starting Diet. Wanna Die.

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Okay, I don’t actually want to die. But I do want to ask God why chocolate, pizza and french fries can’t have the nutritional value of broccoli? WHY GOD? WHY? It’s just so unfair!!!!pizza frenchfries

In reality, I rarely eat any of that. I bet I have pizza once every 2 months or so. French fries every 3 months or so. Chocolate…well…more than that, but only dark chocolate and only in very small doses.

The big problem is that I’ve had thyroid issues for 25 years and hideous, horrible, ungodly, spend-a-zillion-years-at-the-doctor’s-office cortisol problems for almost 20. I’ve had cortisol problems for so long that when I was first diagnosed no one had ever heard of it. They’d say, “Do you mean cortisone, honey? (like I’m an idiot)” I’d say, “No, cortisol. Your fight or flight hormone??” “What’s that?” they’d say. It used to drive me crazy. And trust me, being in a constant state of fight or flight is a delightful way to live. NOT! πŸ˜‰ (Oh, and the people asking for the cortisol/cortisone clarification were DOCTORS! I don’t expect us regular people to know what it is…but doctors? WTF?)

The way the cortisol stuff all started, almost 20 years ago, is that I went from a lithe 140 pounds to 180 in a month. I kid you not. It was horrible! I didn’t know what the fuck was going on.Β  I had black stretch marks all over me. I was barely eating. It was a nightmare.

So off to the endocrinologist I went. They tested me for everything. I had to pee in a jug for 24 hours. I had to be drained of blood every few hours for an entire day. I had to do spit tests. I was told that I had Cushing’s Disease. Addison’s Disease. I got over 12 MRIs and CAT scans. I was put on every drug known to mankind. I was told I had a brain tumor. An adrenal tumor.Β  Which, by the way, I still get MRIs every few years to locate as my doctors think it’s a sneaky micro-tumor hiding somewhere in my adrenals or pituitary. Basically, it’s been a clusterfuck forever.

I’m severely hypothyroid with a TSH of 16 (if you know about TSH you know that’s 4-to-5 times the highest it should be depending on what scale the doc uses) and a T4 and T3 that are a nightmare too. But no drugs work. Oh, and I’m hot all the time, which is the exact opposite of what a hypothyroid person should be.Β  I have a ton of other nonsensical symptoms that are completely and utterly adverse to my blood work. It’s so fucking frustrating I could scream.

I’ve had endos fire me as their patient before. Yep, you heard me. FIRED by my doctor. The lazy ones get tired of not being able to fix me. They get frustrated by my weird symptoms and apparent resistance to all medication and give up. Lovely right? Anyone ever heard of the Hippocratic oath? Hello?

I even had a doctor accuse me of being a raging alcoholic as that can cause elevated cortisol. Fuck me runnin’. I bet I have 2 glasses of wine a year, if that.

Anyway, this blog could be a zillion pages long as it’s been a total and complete nightmare for over 2 decades, but to save you time I’ll cut it short.

What’s going on is that my weight varies depending on my cortisol which goes up and down like a yo yo. I literally have 6 different clothing sizes in my wardrobe as my weight fluctuates so much. Holy shitcakes is that annoying!

Unfortunately, there’s nothing they can do about my cortisol. It is what it is. Until they can find a reason for it, I just live in kind of a tough physical state, and quite frankly, a sometimes very frustrating and exhausting emotional one too. Oh, and the thyroid doesn’t help. So I basically spend my life going up and down in weight. Sometimes skinny to the point where people tell me I look drawn and sickly. Sometimes a little curvier than I’d like (but I still like having T&A for days even when I am a wee bit on the heavier side). Think Baby Got Back by Sir Mix-A-Lot. “Little in the middle but she’s got much back.” πŸ˜‰

Preach on, brother!

So, I’m going to do Atkins. Any diet that lets you eat bacon seems counter-intuitive to me, but I do understand the science of protein, so I’m gonna give it a try.

Anyone done it before? Anyone have any suggestions? Helpful hints? Ways of killing myself that won’t leave a mess? KIDDING on that last part…sort of.

Oh, one last thing, with the cortisol I’ve been told by all my endos that I can’t get my heart rate up as doing so raises cortisol levels, so essentially fuck exercise. Yeah, cause that makes everything so much easier. Ugh!

Feel free to send me good luck vibes (and prayers–I happily take prayers) and let me know if you’ve been successful with Atkins. I usually just eat healthy, unprocessed food, but right now my body is in rebellion, so a girl’s gotta do somethin’! πŸ™‚

XOXOXOX